April 22, 2025
Amy Rivera: Training Lymphedema Ninjas Worldwide
Episode 49
“I started firing people who weren’t going to listen to me.”
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Amy Rivera: Training Lymphedema Ninjas Worldwide
Episode 49
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"When you're diagnosed with lymphedema, I feel like you go through all the stages of grief. And there are moments where I get angry still. There are moments that I'm very happy. There are moments that I'm sad."
This episode features Amy Rivera, who shares her remarkable journey with primary lymphedema – a rare disease she was born with that caused her right leg to grow 200% larger than her left. Amy recounts her decades-long struggle without a proper diagnosis, the pivotal moment when she finally discovered what she had in 2013, and how she transformed her pain into purpose by creating multiple businesses and a non-profit to serve the lymphedema community globally.
This episode is ideal for listeners facing health challenges, entrepreneurs looking to build purpose-driven businesses, and healthcare professionals wanting to better understand lymphedema from a patient perspective. Listeners will learn about lymphedema’s physical and emotional impacts, the importance of self-advocacy in healthcare, and how to transform personal struggles into meaningful work. The insights Amy shares about resilience, business-building, and creating community around a medical condition can inspire anyone to find purpose in their pain and take actionable steps toward both personal healing and helping others.
Show Notes
00:00 – 00:47 Introduction
- Host Cynthia Kirkpatrick introduces Amy Rivera
- Introduction of Amy as author, speaker, business owner, and lymphedema advocate
00:47 – 04:27 Amy’s Early Life and Diagnosis
- Amy explains being born with primary lymphedema
- Description of her right side being twice the size of her left at birth
- Parents being told it was due to how she was carried in the womb
- Growing up with an undiagnosed condition
- Her leg growing to 200% larger than her left leg
04:27 – 07:05 The Journey to Diagnosis
- Discussion about how medical knowledge has changed
- Amy’s self-diagnosis journey beginning in 2013
- Google searches leading to discoveries
- Finding physicians in other countries
07:05 – 10:20 Getting an Official Diagnosis
- Meeting with a physician in Chicago
- Learning about primary lymphedema
- Discovering that 10 million Americans suffer from it
- Recognizing the systemic problems in the lymphedema community
10:20 – 13:17 Emotional Response to Diagnosis
- Processing emotions after diagnosis
- Turning anger into action
- Stages of grief with lymphedema
13:17 – 16:47 Finding Purpose in Pain
- Discussion about being a “victor not victim”
- Amy’s husband encouraging her to tell her story
- Taking speaking classes
- Beginning to share her story with others
16:47 – 19:47 Understanding Lymphedema
- Explanation of what the lymphatic system does
- How lymphedema develops
- Impact on the body
19:47 – 23:55 Managing Lymphedema
- Treatment methods including compression
- Manual lymphatic drainage
- Impact on the body beyond the affected area
23:55 – 26:28 Building a Support System
- Amy’s early consultations
- Expanding from patients to healthcare providers
- Development of her consulting business
26:28 – 30:19 The Business Journey
- How Amy built her expertise
- Learning about business while managing lymphedema
- The importance of passion with purpose
30:19 – 35:15 Entrepreneurial Challenges
- Discussion about failures and pivoting
- Being a “professional firefighter” in business
- The importance of preparation and routine
35:15 – 39:04 Self-Care as an Entrepreneur
- Amy’s routine and preparation strategies
- Managing inflammation triggers
- Balancing business demands with health needs
39:04 – 42:08 Amy’s Business Ecosystem
- Speaking engagements around the world
- Starting the Ninjas Fighting Lymphedema Foundation
- Philosophy behind the “ninja” concept
42:08 – 46:56 Compression Innovations
- Development of Amy’s compression product business
- How she discovered Fast and Go Hybrid Compression Bandages
- Creating Revera Hybrid Solutions
46:56 – 52:33 Educational Programs
- Creation of the Lymphedema Blueprint Course
- Bringing experts together
- Focus on mindset before education
52:33 – 58:56 The Importance of Advocacy
- Being your own advocate in healthcare
- How to communicate effectively with healthcare providers
- Building partnerships with medical professionals
58:56 – 01:03:39 The Ongoing Journey
- Amy’s current work with National Institutes of Health
- The rarity of her condition (0.2% of population)
- Continuing to learn and grow
01:03:39 – 01:07:35 Growth Through Vulnerability
- The importance of listening
- Learning from others
- The “onion” metaphor for personal growth
01:07:35 – 01:10:50 Closing Thoughts
- Where to find Amy and her resources
- The impact of Amy’s story beyond lymphedema
- Future possibilities
Content Notice
This podcast and all She Lift Project content represents the opinions of Cynthia Kirkpatrick and her guests. The content here is for informational purposes only, and should not be taken as professional advice – financial, legal, medical, or otherwise.
Views and opinions expressed in the podcast and across all She Lift Project media channels are our own and do not represent that of our places of work. While we make every effort to ensure that the information we are sharing is accurate, we welcome any comments, suggestions, or correction of errors.
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